Showing posts with label life. Show all posts
Showing posts with label life. Show all posts

Wednesday, July 9, 2014

Lessons from a Leukemia Mom

1. People are genuinely good and want to help. Let them. 

This was the biggest lesson I've come away with and it's been the most difficult one so far. It's HARD to let go and admit that you cannot do something alone. It's not easy to ask for and receive help or believe that people just want to help without anything in return. The world programs us to believe that we must do all things ALONE and be adults and take on all responsibility onto our own shoulders. It's a lie. We need to band together and help each other do life. We need to be able to give whatever we can to a need in someone's life. Sometimes that means donating money or making a meal or just being a friend. 

2. Like all traumatic events, this revealed everyone's true character, including mine.

All abrupt events, typically, will reveal your true character. I've watched this happen before, but was not prepared for the extent of the reveal this time. When your world is shaken you are either standing on a firm foundation or you are not. You cannot fake that. I watched as not only my son was getting treated for a life-threatening illness, but as close relationships were being tested because cancer was now a factor. I was not prepared for the actions and words of others nor was I prepared to know how to handle those situations. Now, I'm stronger in my boundaries and more confident in how to deal with those obstacles. I'm also learning more about who I am and how strong I really am. 

3. Re-examining your life and priorities cannot be avoided. 

Better to do it now than to wait for that life changing event. If you're putting anything before your relationships, your health, or your well-being, don't. All it takes is a few words to jolt you into realizing what's really important. That work deadline/meeting is meaningless. Eating junk to cover up emotional struggle doesn't make the struggle disappear and means you're giving up your health too soon. Are you telling your kids "not now" and "maybe later?" Are you not taking in the gratitude of  the simple moments of a snuggle, a lazy, boring day, or your healthy child? No worries. Something will jolt you into realizing what's REAL and what's not. 

4. Life Goes On. 

I know this lesson way too well. On the one hand we love that life goes on. It means that the struggle won't last and "this too shall pass." But on the other hand, it means that life does go on and sometimes, when you're in a grieving state or life has stopped for you, it feels like everyone is moving on and leaving you to sit in that pain. Bottom line: that feeling sucks. But it's also a motivating factor that your life will see better days. Maybe not the exact days you had planned, but you're still living and breathing and so living is your purpose! We still have a lot of days (about 500) left on this leukemia journey and we still have some struggles to overcome, but we've seen worse days. And that's the key. We've all had worse days but they always pass. Always. 

5. Negativity will always try to win. 

You ARE stronger. You ARE. Ok, so that is a little self-talk that I've been working on myself. Voices from the past will always try to tell you that you're not good enough, you're not worthy, or you deserve whatever uphill struggle you're walking. What's key here is to surround yourself with people who will LIFT you up and remind you of all the things you believe and believe in: hope, love, healing, rest, miracles....When you find people to be your circle of trust you are entrusting them to do all of these things and continue to be on call for you whenever you need them. See #1. We aren't meant to do life alone, but we aren't meant to do life with all the negative people, either. :)  

6. You are more than your role. 

"Super Jace's Mom!" I get that a lot. I'm ok with it. I'm proud of it even. I'm so lucky to get to be his mom. But I'm still more than just that and as the months have gone by it's been easy to feel that most everyone just cares about him and what he's doing or how his treatment is going. Some days I feel like yelling, "I'm HERE TOO!" This is something I have had to work hard at overcoming. I am a caregiver and I'll be the first to tell you that his treatment and progress is top of my priority list, but I do other things, too, and enjoy being other things. 

7. Re-defining yourself is ok.

 I'm now in the stages of finding the new Tisha. The Tisha who has walked through this cancer storm and is coming out on the other side. I'm not the same. I don't do family, friendships, work, love, or passion the same way that I did before. I don't like all the same things I did before and am finding joy in new things that give me peace. Instead of trying to be everywhere and share everything, I'm picking the things I enjoy the most and only sharing what I feel in the moment with no obligation. Being the old Tisha in a new season just won't work. 

8. There will always be another "Goliath." 

Pray for strength and wisdom. Don't pray for an easy life. Strength and wisdom will come because you're open to it in expectation. An easy life doesn't exist. I refer to life's struggles as Goliaths. They all seem giant when we are in the midst of them, but as long as we are faithful we already know how they end! Each struggle is only there to teach you something and prepare you for the next. There are always valleys and mountains! I'm so thankful I'm just not continuously walking around in the desert! 

Wednesday, March 12, 2014

Behind Closed Doors

It's been a few weeks since I've blogged. The last post "Unapologetic" had a lot more response than I expected. I got messages from so many people, comments, and emails came through from many of you who "get it." Or many of you who couldn't believe that people would actually be nasty and negative during an already exhausting journey. 

You can rest assured that I am not angry. I wasn't angry for very long, but as a "mama bear" when I hear what people have been saying to my girls, well, that's another version of Tisha that you'll see. 

Moving on. . . 

The last month has been a struggle. A struggle is an understatement even as we know the struggle IS worth it. Honestly, in this moment of this journey, when most everyone has disappeared, stopped interacting with us, stopped daily reading, this is the hardest. 

I knew this, though. 

Many of you know that I've been down this type of journey before. Losing a young brother at a young age, I saw a lot more and learned a lot more than I wanted to about grief, tragedy, emotional trauma, and people. 

My heart has always ached for those going through grief. I've always had a nudge in my heart to help people like me. 

I didn't expect this journey to feel the same and it does. I knew I would feel vulnerable, just as I did before, but this time I'm so much more aware of it all. 

So often people will comment "You're one day closer to the end!" 

Nope. Anyone who has gone through any trauma in their lives knows that is a myth. 

There is no end. This doesn't just stop. Chemo continues for another 1 1/2 years. So, yeah, that'll be over, but to say THIS will be over. Nope. 

I've been doing some research on this and have learned that many who have gone through this cancer journey also have to overcome what many deal with as post traumatic stress disorder. I've never really tied the two together, but an amazing conversation with 2 amazing women who've also experienced loss pointed it out to me. 

There will always be anxiety about dr appointments, blood tests, simple illnesses....We will always feel the need to "look over our shoulder" in a sense. 

We will always be working through the emotional trauma of all of this. 

What I know now after a LOT of talks with our 13 year old is this: Not everyone will be able to handle being our friend. Not everyone will want to. It's a heavy load to be a friend during this heavy time. Don't hold it against them. Just know that God will bring to you who He knows you need in the exact time you need it. 




#AWARENESS 

{Our day yesterday}

Picnic Day. 

Jace: What's a picnic? 

Yep. It's been that long since we've gone on one. 

After we pulled into the parking space at a pretty cool park, Jace looked around and said "Can we go somewhere with less people? It's so crowded. It scares me." 

Once at the smaller park with no people, we eat. I can see the anxiety on his face. He even says, "Are you sure this is a good idea?" 

We eat, clean up and the girls shriek in delight to go play. 

"Mama, I don't want to to do that. I'll fall."
"I don't want to swing again, It scares me."

My heart drops. He's missed out on so much and this has affected more than just his body. Lord, please give me the wisdom and tools to be able to help these little people through all of this BIG stuff. 

It's already been a long steroid week. His food of choice = Chick Fil A. 15 miles away one way. 

Though, the month has already been better than the last (catch up here www.facebook.com/graceforjace), it's still not easy. Being "alert" every second of every day is exhausting for all of us. 

He yells more. He hits more. He sleeps less. His outbursts cannot be predicted which means we are very strategic about where we go and what we do. 

Steroid week usually means he wants Jason at night to sleep with him (on the floor) and during the day it's me or Avery that he insists on having at his beck and call. 

All the while, we remind ourselves -- it's the steroids. 

So, we pack up to go to our next stop. The girls had been excited about a thrift store visit.
We went in and their faces already seemed defeated. 

5 minutes in and Jace started crying that his feet hurt and he needed to be carried. So, we load up to leave. 

These are the moments no one knows about. The pull as a mom on the one hand wanting to make the week break fun for the girls and the other pull as a mom to get Jace through this week - again. The stress on siblings having to change what they want to do at a moment's notice. 

We drive home in silence. Jace gets angry. More silence. We all know we are at the end of our rope. 

Thankfully, Maddie had a sleepover. We dropped her off. Jace was mad about that, too. 

We got home and collapsed. 

Before the night is over, I think of a way to redeem some time with Avery. So, we head off to the store alone. We have a great time shopping and laughing. The drive home is hysterical as it always is with her. 

Then. 

The call. Jason: Jace has a fever. Again. 

The unspoken rules fall into play. The laughter stops. Plans have to be made just in case. Packing has to start just in case. 

This is our life. Everyday. 

"It's scary, mama, when Jace has a fever or is sick. It scares me when he has to go to the hospital or clinic. We always have to be separated and pack and don't know what's going to happen. It's hard doing this journey. " 

How I ended my night was rocking my girl who was crying through her words. 

Over? It has never once stopped. 

Neither has our love for each other or for him. It never will. 


Thursday, December 5, 2013

37 Gifts

*If you're looking for Operation Love, the blog, item list and details are found here. 

Today, 37 years ago I became a part of this world. I was born with no idea who my family was, but I had a PROMISE bigger than I even knew. 

Our circumstances DO NOT have to be our future. 

Two years ago, I asked you to donate to an adoption organization. (Yes, I had another blog before OTWG. So, if you're bored you can read blogs, there, too.) 

Last year, I asked you to join me in 36 Random Acts of Kindness and I had, hands-down, THE BEST BIRTHDAY EVER! You can read about it and see photos here.

Today, in lieu of getting anything for myself, instead of the 100 Facebook messages or texts, I, again, challenge YOU. 

Instead of doing that, do THIS: 

Give. 

Use your time and energy doing something for someone else. Open the door an extra minute. Pay for someone's food in the fast food or coffee line. Surprise someone with a text message or email. If for no other reason, do it for me, for my birthday. :) Let the celebration be about GIVING. 

Your giving doesn't have to be BIG to make a HUGE impact.





Today, I will be seeing a tiny idea and dream come to fruition. Operation Love was born months ago after our own family learned what childhood cancer TRIES to do to families. This project has been tweaked, thought out and discussed with so many, including those that inspired the idea, those that listened every time I talked about it, those that shared ideas of how to help, those that donated items, those that allowed me to speak to groups about our mission, those that are in the same boat we are, those that wanted to help but didn't know how... 

Today, I will make a delivery of 37+ "gratitude bags" to Children's Medical Center in Dallas. (You can check Instagram for photos!) Today, someone will receive YOUR donations. 

Today, someone will know they are NOT alone. 

Last year at 36, I had no idea what the future held nor how it would test our faith, but THIS year I say WATCH me spread the same love, hope and life into others that has been given to me. 


Here's to another year of changing the world!


Tuesday, November 12, 2013

Operation Love

Jason and I are proud to introduce a new project we've been working on for a while. After being caregivers to #SuperJace the past few months as he went through intense chemotherapy for acute lymphoblastic leukemia (ALL), we realized there wasn't a lot of support for the caregivers (or siblings). After an amazing experience at Camp John Marc and several months of discussion with our clinic nurses, it was evident that caregivers NEED someone speaking love, life, and hope into their days. Especially into their days. The job is, frankly, more exhausting than you can even imagine. Just when you think you might get a break, typically, things just get more difficult or so it seems in the moment. 

Jason and I have been so incredibly blessed to have so many people around us from work, church and the community to speak life and victory into our days, especially on the hardest of days. We know not everyone has that support and we want to pay it all forward. Our vision for now is to help those affected by childhood cancer, but this past week God revealed that so many caregivers need this. 

I was able to speak with a local Youth Leadership Team and a women's church group, recently. Both have graciously agreed to help us launch our project. We are SO thankful to them! Also, A big thank you to everyone who helped plan this project while we were still in the middle of intense treatment. And to Josh, who continues to help us with his graphical design talent. :)

We are calling it "Operation Love" 


Mission:
On the Wings of Gratitude’s  (www.onthewingsofgratitude.com) mission is to make life easier and more comfortable for families of childhood cancer, to love on families, & speak life, hope and love into their lives. After going through a leukemia diagnosis with our own son, Jace, we realized that their was very little support for the families and siblings during our journey. We also saw a need for continued support outside of the hospital and clinic. With the help of the community, school organizations, church groups, and individual donations, we can empower the families with hope, gratitude, and affirmation that they are not alone in their journey.  

What is it?

Chemo Care Kits and Gratitude Bags give people a tangible way to help families affected by childhood cancer and helps to bring awareness of a growing need to not only support the kids, but their families and siblings. The impact of families is much deeper than the cancer, chemo and hospital stays. Items do not have to be expensive to have a great impact.

Here is an example of the postcard we will put in the bags/baskets: 




How can YOU help?
Drop off locations will be created so items can be dropped off.
With the help of volunteers, items will be organized in a chemo care kit for families on both Dallas/Legacy Campuses of Children’s Medical Center.
Other items will be organized in smaller “Gratitude Bags” for the families who attend out-patient treatment on both Dallas/Legacy Campuses of Children’s Medical Center.
Item List (You can donate 1 single item or multiple items.)
*Please ensure items are new and packaged. Devices or other expensive items can be donated directly to Tisha or Jason for cleaning or safe keeping before delivery. )
  1. Purple tissue paper (any shade) for bags
  2. Purple gift bags (any size)
  3. Clear or Brown gift bags (any size)
  4. Rolls of quarters
  5. Travel size laundry soap
  6. Laundry bag
  7. Travel size shampoo & conditioner
  8. Travel size toothpaste, toothbrush, & mouthwash
  9. Travel size deodorant
  10. Chap stick
  11. Socks for men or women ( or kids)
  12. Men and/or women razors
  13. Nail Clippers, nail file, nail polish remover
  14. Q tips
  15. Cotton balls
  16. Ponytail holders
  17. Socks or slippers
  18. Blankets
  19. Water bottles (small)
  20. Granola bars
  21. Fruit snacks
  22. Chips
  23. Popcorn
  24. Candy
  25. Hot chocolate packets with a mug
  26. Instant items for microwave cooking
  27. Travel speakers or headphones
  28. Thank you cards & pens/markers
  29. Envelopes & stamps
  30. Packs of paper, stationary or construction paper
  31. Scotch tape
  32. Food gift cards, iTunes gift cards, VISA gift cards for gas/toll expenses/parking
  33. Any extra used IPads/IPhone chargers
  34. DVDs
  35. Older iphone, ipad, or ipod devices that can be reset for patient/family use

When and Where? 
Current Drop Off Locations/Dates:
  • December Drop Off - TBD
  • January Drop Off - TBD
  • Mailed-In Donations PO Box 6, Celina, Texas 75009

*1st target delivery date is December 5.
*Additional drop off locations will be announced when they become available.
**All advertising for this project needs to be pre-approved by Tisha & Jason Poncio.
For inquiry on advertising, kit contents, or speaking engagements, please contact onthewingsofgratitude@gmail.com.
"The smallest acts of kindness and love can have a giant impact."

Jason and I want to thank you all in advance for your donations. We know that many families will be blessed to know they are not alone and are thought of and prayed for even if they didn't realize it!

So, as you're stocking up on Thanksgiving items, food drive items, or even stocking stuffers, throw in a few of the items listed above and help us love on others!

Big love and gratitude,